Author Topic: GBM on 60 Minutes  (Read 2874 times)

TooSoon

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GBM on 60 Minutes
« on: March 30, 2015, 10:47:26 AM »
Last night 60 minutes ran a double segment about a Phase 1 trial at Duke in which they are injecting the polio virus directly into the tumor.  It hasn't been effective in all cases but in at least three so far the tumor/cancer disappeared - and at least so far has stayed away!  A little hope, perhaps?  Did any of you see it?  Online I can only watch the first bit but hopefully someone will post it on youtube at some point. 

Shelby

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Re: GBM on 60 Minutes
« Reply #1 on: March 30, 2015, 02:49:45 PM »
I saw it and it was incredibly interesting. The parts I saw dealt with glioblastoma in particular; I'm not sure if there were any other tumors they were working with.  It seems that they are experimenting a lot with the dose. I'm so proud of and grateful to the men and women who volunteer for those studies and trials.  I wouldn't have the guts.

Shelby

patriciad

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Re: GBM on 60 Minutes
« Reply #2 on: April 04, 2015, 07:11:56 AM »
I saw it and just sat there in amazement.  Who would have thought that a disease that people dreaded for so many years could be a cure for cancer?  I watch all of these documentaries.  PBS had a special this week:Cancer: The Emperor of the Maladies.  Another very informative piece.

I do believe that there is an answer out there for the cure for cancer.  There are more treatments than there were just 6 years ago when my DH was being treated for lung cancer.  I have to believe there will be a cure someday soon.  That will surely be a day to celebrate.

Pat

fctyler

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Re: GBM on 60 Minutes
« Reply #3 on: June 03, 2015, 09:14:16 PM »
I can't watch the 60 minutes special because it brings back too much pain since my husband passed away from GBM.  All I can think of after reading this post is, "Why, oh why couldn't they have been thinking this way 4 years ago?"  I feel so guilty for being upset and angry today.   I should be happy that they are moving forward in finding a viable treatment for this horrible and extremely fatal disease, but I can't help feeling sorry for myself and my husband that it came 4 years too late.  I can't believe I just admitted being immature and selfish, but man, I am really having a pity party for myself.   :-[


TooSoon

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Re: GBM on 60 Minutes
« Reply #4 on: June 03, 2015, 10:16:29 PM »
It is more than ok to feel that way.  My sweet colleague/friend asked me, when the episode came up, "Aren't you angry?" For me, no.  If I could save one more person from having to know what I know and see what I saw, I would do it in a second.  So would you, I bet.  But it is absolutely normal and ok to feel the way you feel.  The only greater mind fuck than GBM itself is living out GBM with someone you love.  I completely get it.

fctyler

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Re: GBM on 60 Minutes
« Reply #5 on: June 03, 2015, 11:00:42 PM »
Thanks, Too Soon.  That's what I love about this forum; people get how you're feeling even if it confusing or unsettling.  And you're right, I'd never wish this disease upon on anyone, so any step forward is a very good thing.

TooSoon

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Re: GBM on 60 Minutes
« Reply #6 on: June 04, 2015, 12:24:46 PM »
Today I went to my daughter's second grade reading celebration.  The kids made these books where they wrote and illustrated a significant event from each year of their lives.  2013 for M read, "In 2013, my Daddy died." and there was a stick figure of him lying on a bed, looking dead.  God it took me straight back.  It made me angry, too.  We went to Paris in 2013, damn it!  I wish that is what she remembered.  Though I know it is healthy that she's comfortable sharing that with her classmates and teacher and that means she's done a lot of work on her own grieving it still makes me mad.  Mad at that horrifically cruel disease.  I've always been adamant about not "hating" anyone or anything, but I hate GBM.
« Last Edit: June 04, 2015, 12:28:02 PM by TooSoon »

Dahlia

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Re: GBM on 60 Minutes
« Reply #7 on: June 16, 2015, 09:57:50 AM »
I can't watch the 60 minutes special because it brings back too much pain since my husband passed away from GBM.  All I can think of after reading this post is, "Why, oh why couldn't they have been thinking this way 4 years ago?"  I feel so guilty for being upset and angry today.   I should be happy that they are moving forward in finding a viable treatment for this horrible and extremely fatal disease, but I can't help feeling sorry for myself and my husband that it came 4 years too late.  I can't believe I just admitted being immature and selfish, but man, I am really having a pity party for myself.   :-[

fctyler: I totally get it. My dad died of kidney cancer about a year before they were able to dramatically increase the survival rate, and it annoyed me to no end. Not because i begrudged people their survival, but because I wished they could have been a little quicker. However, my daughter was recently diagnosed with the underlying cause of my dad's kidney cancer, and the thought that she has a far higher chance of surviving what killed him has changed my perspective. It took nearly fifteen years, but I am ready to be happy about the progress now.