Young Widow Forum

Specific Situations => Young Widowed Parents => Topic started by: Trying on June 14, 2017, 07:41:51 AM

Title: Enough is enough!
Post by: Trying on June 14, 2017, 07:41:51 AM
DH had Crohn's disease and died from a rare and aggressive form of colon cancer that may or may not be associated with his Crohn's.

Middle son was diagnosed with Crohn's disease at 12 and a rare untreatable liver disease associated with a very small percentage of people with IBD

Last night oldest son, who has IBS was in ER for suspected appendicitis but turned out to be infection/inflammation in GI tract and elevated liver enzymes, needs to go back to GI doctor.

Honestly I don't know how much more I can take.  My poor kids (older 2 are actually young adults now) watched their Dad suffer and have to worry that they are following his same horrible health pattern.  I'm cursing the genetics that continue to hurt the people I love.  It's so hard to sound positive and strong for them when I'm really panicked and fighting thoughts of worse case scenario. 
Title: Re: Enough is enough!
Post by: Captains wife on June 14, 2017, 08:53:35 AM
Sorry Trying...I agree - enough is enough. Your family has been through quite enough...I really hope that all turns out to be ok.
Title: Re: Enough is enough!
Post by: Julester3 on June 14, 2017, 08:57:51 AM
That totally sucks. I hope it's just minor issues and nothing as severe. Hugs for you and your family.
Title: Re: Enough is enough!
Post by: Wheelerswife on June 14, 2017, 05:28:20 PM
I can't imagine your heartache for your children.  (I remember when you were pregnant with son#1!)

Hugs,

Maureen
Title: Re: Enough is enough!
Post by: trying2breathe on June 16, 2017, 08:41:19 AM
Thinking of you and your family and hope that everything is okay.  Big big hugs to you ~
Title: Re: Enough is enough!
Post by: Trying on June 16, 2017, 09:30:00 AM
Thanks everyone. We went to the GI doctor yesterday but only saw the PA who ordered more blood work, cultures and and ultrasound. Next week will see the doctor and decide if he needs a colonoscopy and MRI of his liver.  I was able to be calm and encouraging for him but I know he's worried too. After that appointment I had to go to a 4 hour Hospice training inservice. Needless to say I was emotionally spent by the time I got home!
Title: Re: Enough is enough!
Post by: TooSoon on June 16, 2017, 09:51:35 AM
Hi,  I just wanted to lend a voice of support.  It is so hard.  My late husband's family has a loooong history of neurological problems.  My daughter as an infant had a short lived neurological problem and then Scott died of brain cancer.  It is really hard not to think about these things as being connected and/or in some way preordained.  I fight this line of thinking all of the time. 

I wish you all only the best.  If you do ever want an ear, I am a good listener.  Please feel free to reach out - I often feel like you and I have have been having parallel experiences in many ways.  All my love. 
Title: Re: Enough is enough!
Post by: Abitlost on June 18, 2017, 11:29:19 AM
Thanks everyone. We went to the GI doctor yesterday but only saw the PA who ordered more blood work, cultures and and ultrasound. Next week will see the doctor and decide if he needs a colonoscopy and MRI of his liver.  I was able to be calm and encouraging for him but I know he's worried too. After that appointment I had to go to a 4 hour Hospice training inservice. Needless to say I was emotionally spent by the time I got home!

I am so sorry you and your family are going through this, Trying. Please let us know how things go next week.
Title: Re: Enough is enough!
Post by: Sugarbell on June 21, 2017, 10:45:37 AM
No words of experience or wisdom...just letting you know I'm sending you strength and I hear you!❤️