Carey Posted December 21, 2015 Share Posted December 21, 2015 I DESPISE getting MRIs of the head. Claustrophobia is bad enough without putting your head in a vise too, but I go for an update to see where I stand with the alien invasion in my head. I'm really hoping theres been some significant change for the good. meds to counteract side effects of meds on top of other meds ... well it's getting old and I'm worn down about as far as I can go. I have no energy, taste buds are fried, vision has been affected, balance .... etc. Tired of feeling like an invalid and would like to see a benefit to all this torture. That's what I want most this Christmas. Wish me luck. Link to comment Share on other sites More sharing options...
canadiangirl Posted December 21, 2015 Share Posted December 21, 2015 Sending you much luck! Hoping for positive results for you. Link to comment Share on other sites More sharing options...
WifeLess Posted December 21, 2015 Share Posted December 21, 2015 Carey, Hang in there. Wishing you the best. --- WifeLess Link to comment Share on other sites More sharing options...
Quixote Posted December 21, 2015 Share Posted December 21, 2015 Thinking good thoughts for you! Link to comment Share on other sites More sharing options...
patriciad Posted December 21, 2015 Share Posted December 21, 2015 Praying for some positive results. Pat Link to comment Share on other sites More sharing options...
donswife Posted December 21, 2015 Share Posted December 21, 2015 good luck ! Link to comment Share on other sites More sharing options...
Jess Posted December 21, 2015 Share Posted December 21, 2015 Sending positive thoughts for you, Carey! Link to comment Share on other sites More sharing options...
Guaruj Posted December 22, 2015 Share Posted December 22, 2015 I just noticed this thread. By now, your MRI has probably come and gone. I hope everything went well and you're able to relax now. Link to comment Share on other sites More sharing options...
Torn Posted December 22, 2015 Share Posted December 22, 2015 Carey, So you had to have a brain MRI? I know those suck, ice had several & my future says I'll have many more. What where they checking for? I have Chiari 1 Malformation (brain herniation) & know to much on that subject. Link to comment Share on other sites More sharing options...
CJF Posted December 22, 2015 Share Posted December 22, 2015 I hope and pray all went well and you get good results. Link to comment Share on other sites More sharing options...
Trying Posted December 22, 2015 Share Posted December 22, 2015 Fingers crossed and prayers being said for good news. Link to comment Share on other sites More sharing options...
SoVerySad Posted December 22, 2015 Share Posted December 22, 2015 I hope your results showed improvement, Carey! You deserve some good news! Torn, my son had brain surgery a few years ago for his Chiari Malformation. It was very scary to go through, but it was successful and even allowed for his scoliosis to improve some. I'm sorry you are dealing with the Chiari. Hugs to you both! Link to comment Share on other sites More sharing options...
twistedmensa Posted December 22, 2015 Share Posted December 22, 2015 I hope everything went well today. Link to comment Share on other sites More sharing options...
Torn Posted December 22, 2015 Share Posted December 22, 2015 I hope your results showed improvement, Carey! You deserve some good news! Torn, my son had brain surgery a few years ago for his Chiari Malformation. It was very scary to go through, but it was successful and even allowed for his scoliosis to improve some. I'm sorry you are dealing with the Chiari. Hugs to you both! Thanks for the encouragement,it's my goal in life to see a specialist,I await insurance that will allow me to go out of state. I'm glad your son us doing better,always a blessing Link to comment Share on other sites More sharing options...
Carey Posted December 22, 2015 Author Share Posted December 22, 2015 Carey, So you had to have a brain MRI? I know those suck, ice had several & my future says I'll have many more. What where they checking for? I have Chiari 1 Malformation (brain herniation) & know to much on that subject. I have an inoperable meningioma. I've been taking chemo drugs since June to reduce it since I'm not a candidate for surgery. Chemo is a relatively new thing for meningioma treatment and at first they told me two months, it's been six. I've had an MRI every 2 months since then and I HATE them. I used to work for my neurologist and we are actually friends so he usually calls me the same day with the results but I didn't hear from him yesterday so I'm a little worried. The test also took longer than normal too. If they tell me it's not shrunk any I just don't know what i'll do. It's not cancerous, but nonetheless it's location is dangerous. Link to comment Share on other sites More sharing options...
sojourner Posted December 22, 2015 Share Posted December 22, 2015 Hopes and prayers for the results, Carey, and peace for your heart as you wait to find out your results. Waiting, in my experience, can be virtually unbearable. Link to comment Share on other sites More sharing options...
Carey Posted December 22, 2015 Author Share Posted December 22, 2015 Well. It HAS shrunk about a centimeter. So no, no end to the treatment right now, which is upsetting. I cried for an hour. Because it's smaller it was able to move and is affecting different areas now, causing nocturnal seizures and hearing problems and balance issues. I asked when I could reasonably expect to quit the pills and he said no set time just check again in 2 months. Yet again. Link to comment Share on other sites More sharing options...
Trying Posted December 22, 2015 Share Posted December 22, 2015 I'm sorry to hear that there wasn't a more significant change and that you have to continue treatment. I hope the New Year brings you some peace and better health, I think you've more than met your limit of life stresses and deserve a break. Link to comment Share on other sites More sharing options...
Torn Posted December 23, 2015 Share Posted December 23, 2015 My heart goes out to you,as I do know the abnormal and dangers if excess pressure in the brain. Obviously we all want you 100% better and hopefully you get there soon. Like all things,stay positive my sister in head pain,I hope your next scan reveals more marked improvement Link to comment Share on other sites More sharing options...
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