BrokenHeart2

Sorry to hear Maureen. Hugs

How old is she T2B?

She is so courageous and beautiful!!!

Thank you Everyone! Lewis, thank you! Hard to type through the tears. Kathleens breathing tube was removed this morning and for the first time in her short life of 21 yrs, she is getting 100% O2!! She commented about breathing without crackling!! My sister posted a picture of her sitting in a chair less that 24 hrs after her surgery! Truly a miracle to see! Keep the prayers coming! Hugs.

To look into his beautiful blue eyes and he says "I love you Babe" I just melted every time. Yup he broke my heart when he died. I hope it can heal again.

Giant hugs MrsT85. 3yrs, where did the time go. The what ifs are excruciating sometimes. I'm at 3 yrs next month and starting to get that feeling too. Blessings to you.

UPDATE!!! Thank you everyone for you prayers. They are being heard!! Approximately 1 hr ago my sister (Mom) updated all of us in the group created on FB. Instead of me telling I will copy her post here for you to read!!! Wow! Kathleen is still in surgery but the surgeon came out to tell us everything went as well beautifully. She was a star patient!! Very strong and stable throughout the day. No blood transfusion needed and she's already doing the work of breathing with her new lungs, although obviously still heavily sedated. They are working on closing her up now. It will be another hour or so before we get to go see her. He expects her to be awake this evening~quite drugged!! Thanks for all your prayers and support. Don't stop now~ there are many complications that can occur over the next few days that they will be monitoring closely. But just WOW!!! Kathleen has new pinkies!!! This is surreal! For the first time in Kathleen's life she will be able to breathe with no CF in her lungs!! And she will never have CF in her new lungs!! Keep the prayers coming, she's not out of the woods yet!!

Me too!

She is on her way to surgery just now. It's a MATCH! Holy shit it's happening!

Yes SVS thank you, I just need him right now so much. I need him to here with me and hold me in his big bear hug to ensure me it's going to ok the way he always did. I know its not about me right now but I need him so much. Testing is happening right now to see if it's a match, that's not sure yet, it could be many more hrs. If it's not that will be very disappointing. If it a go, yay. Time will tell.

I need him so much right now.

Thank you all for your support and prayers. They are much welcomed and needed at this time.

Thank you all and yes Trying "for her surgical staff and for the family who made the decision to give the gift of life during their darkest hour." thank you for this! We have all been so aware what will happen for my niece to get her life prolonged. It has pained us all knowing and we pray the family finds a tad bit of comfort knowing what they are giving. I think we have all been there. No words.

My niece called me on the way to the hospital. They got the call. I asked her how she is feeling about it and she said finally! I feel like I've been kicked in the gut. I want to be optimistic but after what I've been through my optimism has taken a shit kicking. For those of you who don't know what I'm talking about. My 21 yr old niece has CF and is now on her way for a double lung transplant. All your prayers are welcome and needed!

That's ok T I didn't believe them either earlier out because how could it be possible to go on without him/her for the rest of your life. Just the thought of that would make me angry and bring me to my knees. Just couldn't imagine. Remember to breathe ( I had times when I was so intense I had to just try to breathe calmly) and drink lots of water. Oh and post here whenever you want, we get it! Big giant hugs!

Damn those pesky little rodents!

OMG TTA that's hilarious Virgo, I sure hope you are joking about sending pics and videos. Once they are out there you can never get them back.

It's not just you TTA. Me too. Nothing is black and white. Unless it's just us two that think this way. Mizpah, I hope you find your answers. On Thursday Mizpah thanked us all for letting her talk this out. Hmmm, maybe she done talking about it. Just sayin.

Rant away Eileen! That's what we're here for! I'm sorry you have to deal with all of that. Best of luck with your new business venture!! Big hugs.

Yes, it was very difficult for me as well. I can relate to everything you said. One day at a time is all we can do. Big hugs DR

Good for you T for getting it done!! Aren't the people here amazing! Hugs!

Ok you 2 previous old farts... She is young! I'm old too so don't rag on me. I get what she is upset about. He needs to grow up and step up!

Awe CG thanks for imagining my brain too. When we don't have our significant other to bounce our thoughts, feelings or hardships off of like we had used to I feel like this is what happens! Widda strong (or crazy like I feel some days )

For me Kenneth it was Thursday. Excruciating early on. Never felt any pain like this ever. Give yourself time to heal. 5 weeks really is very early out. Do what you need to do to get through the day remembering to breathe. Crying is dehydrating, drink lots of water and you may not care to eat but please do. My DH and I also did everything together so yes, its a very lonely journey at times. We're all here for you as we get what you're going through. Big hugs to you.

Awe, seems we all have that pesky little busy hamster!