BrokenHeart2 Posted February 7, 2016 Share Posted February 7, 2016 Hi Fellow Wids I haven't commented on here much because I've been struggling with the fate of my beautiful 21 yr old niece. Kathleen has cystic fibrosis and has been declining over the past many yrs. She was in hospital when DH died 2.5 yrs ago and it was non negotiable to her with the drs she was attending his funeral 1 hr away whether they liked it or not. She was there, God bless her soul. She just loved her Uncle Gord. He taught her to drive a 3/4 ton truck on the lake and so much more. Now here the hard shit. She's in hospital and on oxygen 24/7 waiting to get on the double lung transplant list in Toronto and struggling to breathe. I am a mess. Today is her Mom's my sisters 50 th birthday. Oh God this is just so heartwrenching and I just want to be strong for them all. I feel like I can't be because I feel so broken. My nickname for her since she was a toddler has been Angel but now I feel I can't call her that in case it becomes real before it should be :') Link to comment Share on other sites More sharing options...
sojourner Posted February 7, 2016 Share Posted February 7, 2016 Dang, that's one seriously rough situation all around. I'm so sorry! :'( To some extent, I can relate. Now with my older sister facing terminal cancer (barring a miraculous scientific breakthrough from a clinical trial she's in, but I can't even delude myself about that, as I've already lived that movie and it didn't end " ... and they lived happily ever after."), I have to bury my grief when around my family. So I'm kinda living the part about trying to be strong for your family, too. It sucks. Link to comment Share on other sites More sharing options...
SoVerySad Posted February 7, 2016 Share Posted February 7, 2016 I'm so very sorry, BH2. What a heartbreaking situation. 21 is so young and I know with CF she's been through so much already. I hope she can soon get the lung transplant. Just shower her and her family with love. I know from your posts you are a very loving person. It's okay if you can't be as strong as you think you should be. Just being there for them as much as you can and letting them talk when they want, etc. will be a comfort. Sending you tight, tight hugs... Link to comment Share on other sites More sharing options...
Amor Posted February 7, 2016 Share Posted February 7, 2016 (((hugs))) Link to comment Share on other sites More sharing options...
Amor Posted February 10, 2016 Share Posted February 10, 2016 Any updates on your niece? I hope she is comfortable and being taken care of well. My thought are for you and your family. Amor Link to comment Share on other sites More sharing options...
Trying Posted February 10, 2016 Share Posted February 10, 2016 I'm sorry I missed this the other day when you posted. What a difficult time for you and your family, my thoughts and prayers are with her and all of you. Link to comment Share on other sites More sharing options...
BrokenHeart2 Posted February 11, 2016 Author Share Posted February 11, 2016 Thank you all. She has been having a difficult time breathing and has been put on a bipap machine to help. This machine is not good for CF because it dries the mucous. She has been fast tracked onto the transplant list and right now they are waiting for the helicopter to take her to Toronto. I can't believe this is happening. I pray she gets lungs in time. Everyone else seems so together and I feel like an emotional wreck. Link to comment Share on other sites More sharing options...
Wheelerswife Posted February 11, 2016 Share Posted February 11, 2016 Having been in a situation where my first husband was very critically sick - and also airlifted to another hospital for the hope of more skilled treatment - I understand how the people around your niece seem to be holding themselves together. They have to...it is how they keep hope alive. On this side of death and loss, we know more about the aftermath, and that leaves our emotions frazzled in a different way. Hugs, Maureen Link to comment Share on other sites More sharing options...
MrsDan Posted February 11, 2016 Share Posted February 11, 2016 I'm very sorry about your niece and hope she gets those lungs. Life can just be so unfair. Link to comment Share on other sites More sharing options...
Amor Posted February 12, 2016 Share Posted February 12, 2016 Thank you for the update. I do hope she is able to get the transplant soon and that she is as comfortable as she can be. Amor Link to comment Share on other sites More sharing options...
BrokenHeart2 Posted February 13, 2016 Author Share Posted February 13, 2016 Thank you Maureen, I was thinking that but didn't know if I was trying to rationalize or something has changed in me. I never used to be this way, yes some th,kings have changed in me in so many ways. Others I think are confused about me now. Thanks MD and A! Good news today, she was finally airlifted to Toronto,. My Sis And BIL drove to TO (blizzard conditions on 401 and had to pull off many times...that's Ont for ya). Kathleen with her parents there OFFICIALLY signed her consent form and is now officially eligible! They and all of us have been waiting a long time for this. The unfortunate part in all this is someone's family will feel this horrific loss to gain her healthy lungs and restore her health. We are all very aware of this and heartbroken at the same time. Such a dichotomy. Thanks for all you support. Blessing and hugs. Link to comment Share on other sites More sharing options...
BrokenHeart2 Posted February 14, 2016 Author Share Posted February 14, 2016 I found out today she is at the top of the transplant list which good and not so good at the same time. Her lungs are failing and needs this to be done ASAP. Prayers are very welcomed. Link to comment Share on other sites More sharing options...
widowat33 Posted February 14, 2016 Share Posted February 14, 2016 Sending prayers! Link to comment Share on other sites More sharing options...
CJF Posted February 14, 2016 Share Posted February 14, 2016 Ill pray for her. Link to comment Share on other sites More sharing options...
Portside Posted February 14, 2016 Share Posted February 14, 2016 Of course! Link to comment Share on other sites More sharing options...
Trying Posted February 14, 2016 Share Posted February 14, 2016 Continued prayers Link to comment Share on other sites More sharing options...
sojourner Posted February 14, 2016 Share Posted February 14, 2016 Praying!! Link to comment Share on other sites More sharing options...
linda5 Posted February 14, 2016 Share Posted February 14, 2016 I'm also throwing in my prayers for your niece. Link to comment Share on other sites More sharing options...
Mr C Posted February 14, 2016 Share Posted February 14, 2016 Sending prayers for your niece. Link to comment Share on other sites More sharing options...
BrokenHeart2 Posted February 15, 2016 Author Share Posted February 15, 2016 Thank you all! Your prayers are very much needed and so appreciated!! Link to comment Share on other sites More sharing options...
gracelet Posted February 16, 2016 Share Posted February 16, 2016 Prayers here from the UK too. xx Link to comment Share on other sites More sharing options...
Mrskro Posted February 16, 2016 Share Posted February 16, 2016 Hugs and prayers. Link to comment Share on other sites More sharing options...
Still Standing Posted February 16, 2016 Share Posted February 16, 2016 Sending prayers for your niece. Link to comment Share on other sites More sharing options...
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